Chronic Illnesses, Syndromes, and Rare Disorders: The Ultimate Teen Guide

Gr 8 Up—Teens living with a syndrome, chronic illness, or disease too often lack an understanding regarding the challenges they face on a daily basis. This latest addition to the series sheds light on various ailments and dispels common misconceptions. The book covers nine conditions (celiac disease, Crohn's disease, Down syndrome, hemophilia, melanoma, multiple sclerosis, phenylketonuria, sickle cell disease, and Tourette's syndrome). Each chapter begins with an explanation and describes symptoms and how common each one is. When necessary, context is provided; for example, the chapter on Crohn's disease comes with an explanation of the digestive system, while the section on hemophilia discusses clotting factors and how they work. Numerous text boxes highlight first-hand accounts and observations by teens. A brief chronology of the disease throughout history is included when applicable. Tips on managing the condition are offered, and the final chapter, in addition to covering topics such as bullying, stress relief, and sibling relationships, provides general resources (organizations that help with financial assistance and insurance, medical-related transportation, and housing options during treatment). Although this volume is somewhat narrow in focus, it is informative, the writing is accessible, and the content will be truly helpful for teens dealing with the conditions themselves or for those who have a family member or friend affected.